Tree Nut Allergy

Living with a Nut Allergy – A Kid’s Perspective

Hi, my name is Eva. I am 8 years old, and I am allergic to nuts.

I feel like my life is hard because more people keep putting more and more nuts in food, and that makes it less safe for me. Every time my mom gets a baked good, I always read the label.

My mom is very nice and instead of making banana nut bread, she makes banana chocolate chip bread.

It’s really frustrating when other people have cakes, cookies and cupcakes at their birthday parties that have nuts in them.

I found out I was allergic to nuts when I was about 4 years old. I ate a cookie with nuts in it, and I had an allergic reaction. I only had a bad reaction to nuts once, but thankfully I didn’t have to go to the hospital. Instead I just got very sick and threw up. We were all very scared, and didn’t know what had happened until the doctor said I was allergic to tree nuts.

For a long time, I was only allergic to tree nuts. But the last time I had a skin test, it showed I had became allergic to peanuts too, which made my mom very sad.

Now that I am 8, I am a lot more aware of my allergy to tree nuts and peanuts, I’m very careful.

That is all about me and my life with nut allergies for now.

-Eva

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Massachusetts Boy Taken to Hospital 7 Times for Exposure to Nuts at School

Massachusetts fourth-grader Carl Sackrison has a nut allergy, and he has had to go to the hospital seven times due to nut exposure since he started school.

The Eagle-Tribune states: “While teachers and administrators appear to have tried working with the student and his parents over the years, the 9-year-old has gone to the hospital seven times for treatment for severe reactions to exposure to nuts in school since he started at Methuen Public Schools, his parents said.”

“I’m at a point where I don’t trust that they can keep him safe any more,” mother Glenda Sackrison said.

This story is disturbing, but equally so are some of the comments of hostility and misunderstanding for nut allergy sufferers.

Here is one comment that I want to reproduce an excerpt from it here because it is a really powerful statement:

Parent007:

Until a powerless parent sees their child lying there with their throat closing up, tongue swollen and hours later their whole head swells and turns cherry red with all proper meds, IV, epipens given while in the hospital, can they comment on nut issues.  Our children have experienced their own mortality.  Something they will live in fear of their whole lives and it takes a lot of responsibility for a parent, never mind a child, to be constantly on your toes when it only takes the dusting of a nut to have your child go into reaction. … There is an epidemic going on with allergies and our children.  The schools better brush up on the tiny little paragraphs they have in their school booklets regarding allergies.  It is pathetic.  Three pages on how to drop off and pick up your child correctly to school and one paragraph on allergies (no mention of life threatening) in our school.  …  School administration and parents please be aware how serious this is, it is deadly.  It may take a little more effort on your part but it will save a child’s life.  It is time to change the 10-year old “Individual Health Plans” we fill out for our kids …  My child’s plan is only in the nurse’s office, if her teachers want to read it, they need to take it upon themselves.  I, as a parent, have to make copies and hand out to each teacher.  Nurse stated “I can’t distribute their Individual Health Plans to each teacher even if it can help save their life, every child is different. There is a lot of allergies.” She said there will be one copy and it will be in her office.  8 hours a day is a long day for these kids to be on their toes and us holding our breath. Parents need to take FULL responsibility even when their children are in the care of school for 8 hours. Our nurse in elementary school told me that parents are being totally ridiculous, they have to teach their children to live in the REAL world. … Very scary leaving your child in the hands of people for 8 hours that just don’t GET IT!  …  Incidents happen every day and the schools are sweeping it under the rug, no death, no problem, no changes needed.  It always takes a death, scary but true.  Just like bullying.  IT’S ONLY ABOUT OUR CHILDRENS LIVES AND DON’T THINK IT CAN’T HAPPEN TO YOURS.

At my daughter’s school, the nurse is only present one day a week due to the fact that she has to rotate among multiple different schools in the district. So it’s unlikely she would even be on site in case of an emergency, which has been a source of worry for me. Do you feel like your child is safe at school?

Source: Eagle Tribune
Parents: Schools aren’t protecting allergic son from nuts

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Eating at P.F. Chang’s with a Nut Allergy

We crossed Chinese food off our menu of options to eat out a long time ago due to the risk of nut exposure. Same is true for Indian and Thai food. Personally, I love, love, love ethnic food, so this is quite a loss. (Insert sad face here.)

Recently, my sister wanted to have her birthday lunch at P.F. Chang’s, so that’s how we ended up at a Chinese restaurant for the first time in years.

However, before we even could agree to meet at P.F. Chang’s, we had to call to talk to them about the relative safety. To our surprise, the staff member answering the phone said that he has a nut allergy too and eats there all the time. He assured us there were plenty of nut-free items to choose from on the menu.

That was good news, to be sure, so off we went to P.F. Chang’s. Once we were seated, I began perusing the menu, and noticed this statement:

As soon as I told the waiter that my daughter has a nut allergy, he said he would get the manager. She came to the table and said she could provide us with a specific menu of nut-free items to order from. I was delighted to hear of such a thing as a nut-free menu! Unfortunately, due to an apparent printer malfunction, we never received the nut-free menu, but the manager and waiter were able to go down the list of safe options for us.

This, however, is where things got a little confusing. They kept mentioning their gluten-free menu and said that we could choose from those items and they would be made gluten-free. (Did I mention they were gluten-free?) I kept saying my daughter doesn’t need to avoid gluten–it’s nuts that are lethal to her–and asking what did the gluten-free menu have to do with anything, but they just kept directing us back to the gluten-free menu. Aside from this weirdness, they seemed to be very clear on what had nuts and what did not, so we placed her order for chicken-fried rice from the kids’ menu.  She could have this, they said, but only if it was prepared from the gluten-free menu. Seriously.

Among the items she could not have straight from the normal menu was fried rice, so her chicken-fried rice was somehow made with steamed rice. It was a little odd and it had a kind of a grilled taste, but she didn’t complain, so I didn’t say a word. (She’s an extremely picky eater, so if she’s eating a safe, relatively healthy meal, I’m happy.)

I had ordered appetizers of crispy green beans (best item of the whole meal!) and dumplings. They made the point of saying she could have the green beans, but not the dipping sauce, and that she could not have the dumplings or their accompanying sauce. The restrictions were baffling, but we assumed it must be due to risk of cross contamination and appreciated their apparent vigilance.

When it came time for dessert, again, they were extremely clear and on what she could not and could have (chocolate mousse).

So, overall, I was generally impressed with P.F. Chang’s awareness and sensitivity to patrons with nut allergies. We enjoyed going out for Chinese food for the first time in years, and my daughter left the restaurant safe and happy, and for this, I am grateful.

But I remain confused about the cross-referencing between gluten-free and nut-free. My concern is that there seem to be a lot of nut products in a gluten-free diet, as a substitute for wheat, so is there risk lurking in a gluten-free menu?

It is also frustrating that the restaurant has created an entirely dedicated menu for patrons with gluten intolerance. However, there apparently is no such menu for food allergy sufferers who could be at risk of having a fatal reaction. Since we weren’t given one at the restaurant, I scoured their website and FAQ when we returned home, but found nothing related to nut allergies beyond the statement printed on the menu to inform the server if you have an allergy.

I remain perplexed and resolve to call the company to try and gain a better understanding.

Have you eaten at P.F. Chang’s with a nut allergy? If so, what was your experience?

 

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Nut-Allergic Georgia Teen Dies after Reaction at Golden Corral

Fifteen-year-old Diallo Robbins-Brinson of Macon, Georgia, died after an allergic reaction at a Golden Corral restaurant in McDonough, Georgia. Diallo was having dinner with his soccer team and grabbed two of his favorite cookie for dessert: white chocolate with Macadamia nuts.

Within minutes of eating the cookies, Diallo was sweaty, had swollen eyes and was on the floor unconscious. Someone else in the restaurant offered their Epi-Pen Jr., and it was administered to Diallo, but the dosage was not enough to reverse the anaphylaxis. He was transported to the hospital, but never responded or regained consciousness. He died two days later.

Diallo’s mother said he had been allergic to peanuts his entire life and avoided them, but that he had eaten white chocolate Macadamia nut cookies many times and never had a reaction. He so accustomed to diligently avoiding peanuts, that he no longer carried an Epi-Pen.

This story is so upsetting in many ways. My heart goes out to the family of Diallo. To read of the lightning speed with which anaphylactic shock can stop a promising young life is absolutely devastating.

It’s unclear whether the anaphylaxis was triggered because he had unknowingly developed a tree nut allergy, or  if there was actually a peanut hiding in the cookie he ate.

This points to so many things to be concerned about in my own life with my nut-allergic daughter. She was originally only allergic to tree nuts, and could actually eat spoonfuls of peanut butter with no concern. But about two years ago, her skin test revealed a reaction to peanuts as well. The reaction was not as severe as that to tree nuts, but it had emerged nonetheless, which was very disappointing. I guess this story shows that if you have a food allergy, you should have skin tests regularly throughout your life? I don’t know, but the prospect of walking around without the knowledge that a food is potentially lethally to you is very disturbing.

This also makes me think about the times we have eaten at this restaurant. It is, in fact, one of my nut-allergic daughter’s favorite places to go. (Though it is my least favorite!) When we have gone, we always scrutinize the buffet, and her dessert options are always limited to the soft serve that comes out of the ice cream machine. But even with those precautions, it often still feels like a minefield with the inevitable pecan pie and other mystery food items presenting life-threatening risks.

I’m thinking we should never go to that restaurant again. What do you think?

Do you have a tree nut allergy or a peanut allergy or both?

Source: Atlanta Journal Constitution
Teen dies after apparent allergic reaction to nuts

 

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Eggs in a Chocolate Nest

After trying the Peeps in a Nest the other day, I thought I’d attempt some more nut-free chocolate nests, and top them off with egg-shaped chocolates this time.

chocolate-nests

These were so fun and easy to do! Here’s what you’ll need:

  • 1 bag semi-sweet chocolate chips
  • 1 bag chow mein noodles
  • 1 tbsp vegetable oil
  • egg-shaped candies (chocolate or jellybeans)

Everything in our house has to be nut free, so I used semi-sweet chocolate chips from Target which did not have a “may contain nuts” or “made in a facility which also processes nuts” warning label. I melted the bag in a double boiler and added about 1 tablespoon of vegetable oil. Once melted take the chocolate off the heat and mix in the chow mein noodles. I used just enough so they were all coated with chocolate.

I used this brand of chow mein noodles that is nut free and had no warning statements on the label.

 

Next, simply start making your nests. You’ll want to take about a 1/4 or 1/2 cup amount of the mixture and shape it into a nest. I put them all on a parchment paper-covered pizza pan and that worked fine for me. This is incredibly messy, but that’s what makes it even more fun for the kids.

After shaping your nests and getting all the chocolate washed up, top your nests with your favorite egg-shaped candies. You can use chocolate candies or jellybeans.

I used these chocolate eggs from Hersey’s with pastel candy shells.

chocolate eggs

chocolate egg ingredients

These candies are nut free and have no warning statements on the label.

If you use jellybeans, you’ll want to make smaller nests. The best part is, these not only look adorable, they’re delish! Have fun making this nut-free treat for Easter or anytime!

Eggs in Chocolate Nests

 

 

 

 

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Blue Peeps in a Chocolate Nest

I made these nut-free chocolate nests this week for the first time ever. They were so easy! Adding the bright blue Peeps created an eye-catching treat. (I’ve never liked Peeps, but after making these, I dislike them a bit less!)

I can’t believe how easy these were to make. If you want to try, here’s what you’ll need:

  • 1 bag semi-sweet chocolate chips
  • 1 bag chow mein noodles
  • 1 tbsp vegetable oil
  • peeps

Everything in our house has to be nut free, so I used semi-sweet chocolate chips from Target which did not have a “may contain nuts” or “made in a facility which also processes nuts” warning label. I melted the bag in a double boiler and added about 1 tablespoon of vegetable oil. Once melted take the chocolate off the heat and mix in the chow mein noodles. I used just enough so they were all coated with chocolate.

I used this brand of chow mein noodles that is nut free and had no warning statements on the label.

Next, simply start making your nests. You’ll want to take about a 1/4 or 1/2 cup amount of the mixture and shape it into a nest. I put them all on a parchment paper-covered pizza pan and that worked fine for me. This is incredibly messy, but who’s every complained about melted chocolate all over their fingers?! (I actually started out using those food safety gloves, but they slipped off and were more in the way than helpful, so I ditched them.)

After shaping your nests and getting all the chocolate washed up, top your nests with your favorite color peep. The blue Peeps nearly jumped off the shelf at me in the store, so I used them.

Once I put the little guy in the nest it was clear that I’d created a “bluebird of happiness.”

That made me wonder about the origin of that phrase, and so I checked out Wikipedia which says: “The mythology of the bluebird of happiness has deep roots that go back thousands of years. It is a widely accepted symbol of cheerfulness, happiness, prosperity, hearth and home, good health, new births and the renewal of springtime.”

All that and nut-free too! So, if you want to put a smile on your face today, try a bluebird of happiness!

Or if you can’t find blue peeps, any color makes for a really cute treat.

Multi-Color Peeps in Nut-Free Chocolate Nests

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Nut Free Halloween Treats

I ran across several adorable mummy cookie recipes before Halloween and tried one yesterday. The recipe uses Hersey cocoa to make yummy chocolate cookies, then you dip them in white chocolate and draw lines to make it look like mummy wrappings and add mini chocolate chips for eyes. Mine didn’t turn as cute as the ones Hersey, of course, but they were a delicious and safe, nut-free treat!

Nut free Halloween cookies

The nut-free mummy cookies we made for Halloween.

Thanks to No Empty Chairs for the idea and the modified recipe!

nut-free-mummy-cookie

Eva and the one of the nut-free mummy cookies she made!

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Tree Nut Free Halloween

It’s nearly Halloween and the kids at our house are getting excited!

My daughter plans to be Velma from Scooby Doo (nice choice for my dear little braniac!) and for my son, I think I’ll add a hat to the red tie and pinstripe suit from his aunt’s recent wedding and voila – he’ll be a little mafioso.

Change of plans…my daughter chose a beautiful indian princess costume, so my son will be a cowboy to accompany her trick or treating.

Here are some sites that sell nut-free Halloween candy that I’ve found for my tree nut-allergic daughter.

Happy & Safe Halloween!

www.divvies.com

www.vermontnutfree.com

sweetdelightnutfree.com

www.peanutfreeplanet.com

www.tickleyourtummy.ca

amandasown.com

allerneeds.com

www.enjoylifefoods.com

www.peanutallergy.com/store

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Tree Nut Free Peanut Butter?

A reader asked me if I knew of any brand of peanut butter that is guaranteed to have been made on equipment that does not process tree nuts.

I have spoken to the big 3 brands, Skippy, Jif and Peter Pan and they all said they adhere to the FDA guidelines for allergen management and if there was a risk of cross-contamination, it would be listed in the “may contain” statement on the jar. Of course any company’s processing methods and equipment may change at any time, so always check the labels.

Here’s more details from what each company said and their contact info if anyone wants to investigate it further:

Skippy
1-866-475-4779
Mon – Fri, 8:30am-6pm EST

My tree nut-allergic daughter safely eats Skippy Natural. When I called them, they said the only ingredient that might be of concern is palm kernel oil in the Natural product. They were extremely nice and seemed very eager to help.

Jif
1-800-283-8915
#4 allergen information
#0 for operator
Mon – Fri, 9am-7pm EST

Jif was the most decisive in assuring me that if proteins from allergens were present, it would be disclosed on the label. They said they only process peanuts in their plants.

Peter Pan
800-222-7370
Mon – Fri, 9am-7pm CST

Peter Pan searched extensively on their end to give me the best information available, and ultimately said also that it would be listed on the label if there were other allergens present.

Also, here’s a link to lots of tree nut-free spreads and peanut butter alternatives.

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New Hope for a Cure for Tree Nut Allergies?

Some promising findings were announced today regarding nut allergy research at the division of Pediatric Allergy and Immunology at Duke University:

Studies Show Children Can Complete Treatment for Peanut Allergies and Achieve Long-Term Tolerance

According to the release, a carefully administered daily dose of peanuts was so successful as a therapy for peanut allergies that a select group of children is now off treatment and eating peanuts daily. “It appears these children have lost their allergies,” says Wesley Burks, MD, Chief of the Division of Pediatric Allergy and Immunology at Duke. “This gives other parents and children hope that we’ll soon have a safe, effective treatment that will halt allergies to certain foods.”

The prospect of a cure, or at least a treatment, is positively thrilling. But it does appear that this study was targeted exclusively at treatment for peanut allergy and no other nuts. The press release mentions tree nuts, but only when it refers to peanuts as a type of tree nut, which is an error. I’ve contacted Duke in an effort to find out more and will post here if I get any further information.

I’m wondering if this approach has been tried for tree nut allergies? If any readers are aware of any trials using this desensitization method for tree nuts, please let us know!

Source: Duke Medicine (updated Feb 2011)
Allergy Treatment Helps Kids Tolerate Some Peanuts
A peanut solution given under the tongue can desensitize a child’s deadly peanut allergies.

Source: USA Today
Researchers Move Closer to Cracking Peanut Allergies
Exposure to increasing amounts of peanut flour gradually builds up tolerance. Blood tests show that the immune system begins to ignore the peanut flour instead of attacking it.

Source: ABC News
Is There a Cure for Peanut Allergies?
Young participants in a university study lost their sensitivity to peanuts after food was slowly introduced to their daily diets.

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Disclaimer

The purpose of this website is to provide information and resources. It should not be a substitute for professional medical advice. Please consult your doctor for diagnosis and treatment of a tree nut allergy.